If this is our first time to meet, "Hello". I am Rachelle, the mother of an incredible young man named Samuel. Over the past decade, our family has faced a battle I wouldn’t wish on anyone. Samuel’s journey through chronic kidney disease, multiple hospital systems, and devastating medical setbacks has tested our faith, resilience, and strength. Now, as we stand at a crossroads, I’m sharing our story in the hope that it inspires others to help us advocate for Samuel’s care and give him the future he deserves.

A Decade of Challenges

Samuel was diagnosed with Nephrotic Syndrome in 2014, and by 2015, it had progressed to FSGS (focal segmental glomerulosclerosis), a condition that would eventually require a kidney transplant. Despite years of dialysis, medical interventions, and our constant advocacy, systemic barriers made his journey incredibly difficult. We’ve had to navigate hospital policies, vaccine mandates, and inconsistent care, all while watching Samuel’s health—and trust in the...